Federated analyses of clinical data across CTSA hubs is one of the strongest potentials of the network. However, the CTSA clinical data landscape is very heterogeneous in its structure, data quality, and data access. Data harmonization and new semantic technologies can support innovative, collaborative phenotyping, and analytics at scale. Fundamentally, we aim to develop an open-science ethos and unite CTSA community data sharing with broader global efforts.
EXPLORE OUR CURRENT AND PAST PROJECTS |
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PHASE III: Collaborative Enhancement of the ACT Ontology: Usability of the ACT ontology will improve the precision, recall, and reproducibility of identifying clinical cohorts in EHR data sets. Next Generation Data Sharing Core Infrastructure: This ongoing project focuses on clinical data model harmonization and terminology services for the CTSA hubs. The three areas of focus are [1] Common Data Model Harmonization (CDMH) II, a cross-agency (FDA, ONC, CDC, NCATS, NCI) effort to harmonize the most common clinical data models; [2] the Healthcare Open Terminology (HOT), a multi-agency (NCATS, NCI, multi-hub) effort to harmonize value sets and terminologies in a sustainable ISO format; [3] Vulcan, an HL7 research data accelerator project to define FHIR resources that connect real world data (e.g. CTSA) with regulated submissions. CONTINUING & PHASE II: |
We are actively seeking community members to participate in our task groups. HOT Ecosystem project meetings occur the 1st Wednesday of the month. Contact data2health@gmail.com to access meeting invitation. Signal your interest at bit.ly/cd2h-onboarding-form |
